Special Health Care Needs
Children with Special Health Care Needs
The Medical Home Initiative for Children with Special Health Care Needs This is the American Academy of Pediatrics' initiative to provide support for all who care for special needs children.
The Los Angeles Medical Home Project for Children with Special Health Care Needs This is the site of a local Medical Home Project based in L.A. A particularly useful resource on this site is the "All About Me" book you can create for your child. This book contains all of the necessary information and documentation to help you and your child's service providers coordinate the care of his/her special needs; the site gives you the templates to customize your child's own book.
STATE AND COUNTY DEVELOPMENTAL RESOURCES
California Department of Developmental Services This is the agency through which the state provides services to those with developmental disorders and disabilities.
Childrens Medical Services This is the branch of the Dept. of Developmental Services that provides the system of healthcare through which California children with various special needs receive services (including CCS, CHDP, etc).
North L.A. County Regional Center This is the agency through which residents of Northwest LA county receive services for developmental disorders and disabilities.
Tri-Counties Regional Center This is the agency through which residents of Ventura, Santa Barbara, and San Luis Obispo counties receive services for developmental disorders and disabilities.
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
- National Dissemination Center for Children with Disabilities
- National Center on Birth Defects and Developmental Disabilities
- Children and Families Section of the U.S. Dept. of Health and Human Services
- The ARC
- Office of Special Education and Rehabilitation Services (U.S. Dept. of Education)
- Social Security Administration/Supplemental Security Income
LEARNING DISABILITIES
- Learning Disabilities Association of America
- National Center for Learning Disabilities
- National Dissemination Center for Children with Disabilities
- Council for Exceptional Children Division for Learning Disabilities
- Council for Learning Disabilities
- LD Online
- International Dyslexia Association
- Schwab Foundation for Learning
SPEECH AND LANGUAGE DISORDERS
- American Speech-Language-Hearing Association
- Stuttering Foundation
- Childhood Apraxia of Speech Association
- National Institute on Deafness and Other Communication Disorders
AUTISM (and AUTISTIC SPECTRUM DISORDERS)
- First Signs
- Autism Society of America : Numerous resources for families including Information Packages, education,treatment options,transition and employment, links to other resources.
- OASIS: O nline A sperger S yndrome I nformation & S upport : Site with information and resources for individuals with Asperger's and high functioning autism and their families. Includes links to Autism Quotient and Australian Scale for Asperger Syndrome rating scales.
- American Academy of Pediatrics Section on Developmental and Behavioral Pediatrics
- Centers for Disease Control Autism Information
- National Institute of Child Health and Human Development Autism Information
- Autism Source
- Autism Online : Site with information and resources for parents in multiple languages.
BOOKS
"A Parent's Guide to Asperger Syndrome & High-Functioning Autism: How to meet the challenges and help your child thrive", Sally Ozonoff, Geraldine Dawson, and James McPartland
"The OASIS Guide to Asperger Syndrome: Advice, Support, Insight, and Inspiration", Patricia Romanowski Bashe and Barbara L. Kirby.
DEAFNESS/HEARING LOSS RESOURCES
- Raising Deaf Kids
- National Institute on Deafness and Other Communication Disorders
- American Society for Deaf Children
- American Speech-Language-Hearing Association
- National Association of the Deaf
BLINDNESS/VISUAL DISORDER RESOURCES
- American Association of Pediatric Ophthalmology & Strabismus
- American Academy of Pediatrics Vision Resources
- Prevent Blindness America
BIRTH DEFECTS
- March of Dimes Birth Defects Foundation
- National Institute of Neurologic Disorders and Stroke
- National Center on Birth Defects and Developmental Disabilities
CEREBRAL PALSY RESOURCES
GENETIC AND RARE DISORDERS
- National Organization for Rare Disorders
- National Institute of Health Office of Rare Diseases
- National Down Syndrome Society
- National Fragile X Foundation